1 week down

This was meant to be posted yesterday, but I was tired and, well, sleep was more important.

Things with Esther are still going well. The ECMO is doing what it’s supposed to do, and giving Esther the break she needs to get stronger. I seem to keep missing the surgeons when they stop by. But they seem optimistic about getting her off ECMO soon. While I don’t want her to stay on ECMO it is also hard to watch her have to fight to survive when she isn’t on it.

We are hoping for surgery next week if she stay stable once she is off ECMO. But things can change at any moment.

Esther is now on dialysis to help get rid of the extra fluid the ECMO causes. She seems to be doing really well on it and having no issues. She is in the PICU floor now since those nurses deal with ECMO and uralysis more than in the NICU. My only complaint is that the room is smaller and Esther has a lot of equipment so we aren’t as comfortable in there. Thankfully that won’t last long.

Esther’s new room.

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I wanted to say thank you for all the support and encouragement we have received for Esther. I never thought there would be so many people following along in her progress. Thank you for the cards we have received. I look forward to sharing them with Esther when she is older to show her all the people cheering her on and praying for her.

I shared this on her facebook page. Esther at 1 week old.

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