We’ve been hoping for dramatic improvements but instead Ezra has been making baby steps. They are however steps forward, and closer to going home. Over the weekend he came off the heater and today, he got
permission to lay half on his back. It’s not all the way on his back, but in baby step fashion, half. The physical therapist can do more with him now and we get to hold him in more positions. When things don’t happen on your schedule it you have to trust more.
Today we were able to start helping with his dressing changes, since we will still be doing that once he goes home. Slowly we are meeting requirements to go home and someday, hopefully soon they will tell us, “go home.”
Today Ezra had one of his regular weekend nurses and we went out to the children’s museum with Atreyu. The Renucci house has a pass we were able to use and its just a couple of blocks away. Atreyu had tons of fun and we had fun watching him. There is nothing new to report on Ezra, he’s continuing to do well.
Today Ezra turned one month old. When he was born he was 5 lbs 8 oz and 19 in. long. Today he is 8 lbs 8 oz and 20 in. long. He is a little chunker, he is gaining about 3 or 4 oz a day. Which is great. I had some cuddles today, and no one stopped by to tell us anything has changed. We were able to turn his bed off so he can start keeping himself warm. He is so good at that and he looks cute with a little blanket.
Dave keeps saying I need to do a post but I just give him the pouty face and tell him to do it. I feel like if I keep writing post it would be filled with me complaining all the time. It is like a roller coaster of emotions here. Two days ago I was at a point where I couldn’t take it anymore, but yesterday and today I have felt much better and have actually enjoyed being in the NICU. I know it depends on how I am feeling but a lot has to do with who is working with Ezra and how tired I am. Yesterday and today Ezra has had some of his favorite nurses working so that really helps. They are so good with him and such caring people. The night nurse even surprised us with a casting of Ezra’s handprint. It is those small things that make me go “alright… I guess I can hang out here a little longer”.
Ezra is doing so well. The top part of his scar is blistering, which is what they expected would happen. The doctors are just watching that to make sure it doesn’t open. If it does they will probably just have to add a few sutures to keep it closed. Basically just more time for healing while we sit around the NICU.
I spend most of the day just holding Ezra and playing on Dave’s old Iphone. It makes the days go faster. I can’t wait to be home so I can cuddle with Ezra while Atreyu is playing around. If I am with one I miss the other. It is really hard. Atreyu is changing so much here. He is already growing out of his 12 month clothes and has started to climb on everything! (and of course now fall off of everything). I know we will be home soon enough and I will be so happy once we are there.
Well… Dr. Mann stopped by tonight and checked on Ezra as he promised. All we found out is that he is going to check back in a couple of more days. So, for now they are continuing his normal treatment. We get to wait some more. Dealing with Ezras medical stuff has been pretty easy, at least for me. Since we’ve been able to hold him it has been better, but waiting to go home has been really hard. Other than the big wound on his back he seems like a normal newborn, not like a baby that needs to be in the hospital. Right now we just want to go home.