This is how I roll

Ezra did it. He rolled over. And he has done it five times. I know it is the start of some awesome things. He completely surprised me, as I am learning both kids often. I am looking forward to all the other exciting new things Ezra will continue to show us.

He is getting so strong now since he has the extra weight on him. I feel like I have a whole new kid. Every once and a while I see a little twitch in his hip. Most the time I just stare and watch him, thinking in my head whether or not I am seeing his leg move a little, or maybe it is the way he is breathing. I still have no idea, but I do know as he gets stronger he is able to do so much more.


We had 2 doctor appointments in Grand Rapids on Atreyu’s birthday. I was looking forward to seeing the Spinal Surgeon because he has the best idea of what to do with Ezra’s back. Ezra has a Kyphosis on his lower back. Basically his spine curves out like a bump where his opening was. The doctor told us it will be a wait and see thing (like almost everything with Spina Bifida). He said once it starts giving him problems then we will see what we need to do to fix it. Which is great, I thought we would have to have surgery in the next year or two. Glad we get to hold off on it.

Here is Ezra’s back from about 3 months old. You can see the kyphosis.

We met with his developmental pediatrician. We continued to talk about his weight and his development. She was happy with the weight he has gained but would like him to weigh about 16 or 17 lbs. We have a chart for his height to weight ratio, which currently his is about the 15% for that. Our goal is the 50%. Which still doesn’t put him on the charts for his age, but that’s alright. He is becoming so healthy. Once he gains a few more pounds (probably in another month) we will be able to get him off that crap pediasure. 

Sometimes I get nervous when we see new doctors, or follow up with one when things were bad. But these appointments turned out great, even better than expected.
Since all I see is Ezra, somethings seem way worse than they really are. Like his back, imagine having some bone sticking out of your lower back. It sounds painful, but his doctor was so impressed with Ezra’s back. He was surprised at how good it looked (thank you plastic surgery). There are many other things that Ezra has going for him. We thank God for that everyday.

In summery: Ezra is awesome!

Comments are closed.