Day 3

Good news today.   Ezra was taken off the ventilator and is breathing completely on his own.  The nurses want to feed him at 2pm so we’ll see how that goes.  He is looking good, and if he starts eating enough he wont need his IV until his next surgery.  Lauren is being discharged today and we will be able to start settling in more and getting routines for our long stay.  The doctors now anticipate what was going to be 2-3 weeks will now be 6-8. This is primarily for the tissue to heal around the wound.  There wasn’t much for the plastic surgeon to work with and it takes 6 weeks for the tissue to become strong enough.

We don’t know what will happen next except that they will recheck his head with an utra sound on Wednesday the 12th to confirm whether he will need the shunt surgery.  Dr. Scarli is pretty confident that Ezra will need a shunt, but if fluid levels in the brain go down, he may not need it.

For right now everything is going well and we hope that as he comes off the IV that well be able to see his little eyes.