Now that doctor appointments have slowed down (from once a week to every 3 months now) I have been enjoying life with an infant and toddler. Ezra is so much easier than Ateryu is/was.
Atretu is sleeping on his new bunk bed. He did great at first but just this morning he discovered that he can get out of bed. We have been working on that today. Things are going well but there are moments in the day that are hectic.
I have still been trying to finish all of Ezra’s paper work. Sometimes I feel like updating the blog is just another form to fill out. So it has been lacking.
Over the past month I have been working on getting Ezra started in Physical Therapy (PT). He is still pretty weak from all the things he has gone though, so we are trying to make Ezra stronger so he can somewhat catch up. I didn’t expect how crazy figuring out how to get Pt could be. The State offers a program until he is 3 where he can receive PT (or OT, or Speech Therapy) from the schools system. The awesome part is that they come to the house. I don’t have to go anywhere. It took a while to get an evaluation, and because it is a part of the school system, they all were on Spring Break. Now that we have started PT,school is almost out for the summer, and Ezra’s PT will only be here once a month. So we have started PT at another Therapy place. That also took some time to get figured out. Ezra had to be evaluated and approved by insurance. But of course insurance denied that Ezra needed PT for Spina Bifida, so we had to go back and call it something else. Now he is approved, but our insurance renews in May, which means that our family deductible renews in May. So then we would have to pay for it anyway. Right now Ezra is getting as much PT as he can get in the last weeks of April. Then we will see what happens. I am leaning towards switching over to Munson’s pediatric therapy since it is covered by Medicaid and Ezra has that for a year.
I know you all wanted to know all that information, but if you have read this far I guess you survived. I think I dislike insurance stuff more than the Spina Bifida. Ezra has shown improvement with the PT he is getting. Which is great, as a mom you always worry about the little things. Atreyu is a fan of PT also, he likes the stairs and the giant exercise balls.
Here is Ezra and I enjoy the sunny days we had before this snow!