Home update

Now that we are home and I have both boys it is harder to update this thing, but have I mentioned yet that it is so good to be home?

Atreyu is starting to realize that Ezra is here to stay. He is doing much better now that we are home and I am able to be with him all the time, but he is a little

confused by his brother. Sometimes he just doesn’t know what to do about him. When Ezra cries he will either bring him a toy or start crying himself. It’s kinda funny. Atreyu kinda says Ezra’s name but it comes out Rara. He is working on it. He was pretty excited to see all his old toys again.

We are all starting to get back into our routines, which is so great. Ezra is just fitting right in. I still can’t believe we have another kid.
This last week has been a little busy trying to figure out all the things I need to get done for Ezra. Appointments to set up, programs to sign up for. But it is all coming together. I will be happy when it slows down a little. Then again it has only been one week since we have been home.

Apparently when the hospital orders supplies for Ezra’s wound they get enough to last a long time. Then Dave reminded me that we have boys so even if Ezra doesn’t use it now I am sure we will be doing more wound-care later.

Day 46

We are still on the path to head home. Things are looking good to leave tomorrow.

Ezra had his VCUG and things look alright for now. Which mean no cathing and we don’t have to follow up with urology for 3 months. The bladder changes so much so who knows what Ezra bladder will be like in 3 months, but I will enjoy this time where I don’t have to worry about it. Ortho checked out his hips and they look ok also. They are not dislocated but he does have shallow hips. Nothing is being done about it now.
It is so nice not having to worry about this extra stuff and being able to enjoy him just being a baby.

Everyone in the NICU was worried about us taking the long ride home and having Ezra in a car seat for so long, but thankfully the PT here was able to cushion the carseat so there is not as much pressure on the wound. We will have an even longer trip home having to stop every 30 mins, but at least we will be heading in the right direction, no matter how long it takes us to get there.

Tomorrow morning Ezra has an ultrasound to check his head again. If there is a problem then we will have to stay another day or so for them to do a revision on the shunt. I think he is doing great and his head has been feeling less full, so my hopes are high that he should be fine.

I am still waiting for something to go wrong that will cause us to stay here longer. We are so anxious to get home and pray that it will be friday.

God has already done so many amazing things in Ezra’s life. None of the doctors thought he would heal this well, and he has! Please continue to pray that he is well enough to come home!