Last week we had 3 doctor appointments in Grand Rapids. It was a busy and emotional time. I think because before we left, Monday night, I thought it would be fun staying up until 2am canning peach jam and apple sauce with Janel. Ok it was really fun but I really missed my sleep.
On Tuesday we headed down to Grand Rapids for Nuerosurgery and Ortho appointments. Nuero went well, Ezra’s shunt is working great so we left there happy. After lunch and a quick nap we went to see Ezra’s Orthotist. They took X-ray’s of his back to get a better idea of what things look like. Then they weighed him, and he lost a pound! A whole pound since his 6 month check up! I was shocked and on the verge of tears. Ezra nurses great so I thought he would have at least gained a little weight, not lost it! On a good note his doctor said Ezra looked great from a ortho stand point. His legs are looking good and we wont have to do any surgery on his back for a couple years still.
Friday we had an appointment with Developmental Peds, which is just a more specific pediatrician. Since Ezra is behind in his development his other doctors wanted him to be seen to see if there was anything more we could be doing. It came at a good time since he has been losing so much weight. We spent the appointment talking about his failure to thrive and what else we can be doing to help him gain some weight. Ezra needs to eat a lot more than he is now. They think because he is so tiny and weak that he burns to many calories eating. So I get to nurse him more, and work on solids more. He will get weekly weigh ins to make sure he is heading in the right direction.
We ended the week at the farm. Atreyu enjoyed checking out the cows and drinking the milk. He now say “k-ow MmmmMmm” (cow, moo) whenever he sees a cow, or a horse. Ezra kept warm snuggled with me watching the cows. We are glad the week is over, and we have a nice slow week ahead with only 2 PT appointments.
