Category: Spina Bifida

Well… Dr. Mann stopped by tonight and checked on Ezra as he promised.  All we found out is that he is going to check back in a couple of more days.  So, for now they are continuing his normal treatment.  We get to wait some more.  Dealing with Ezras medical stuff has been pretty easy, at least for me.  Since we’ve been able to hold him it has been better, but waiting to go home has been really hard.  Other than the big wound on his back he seems like a normal newborn, not like a baby that needs to be in the hospital.  Right now we just want to go home.

We had a good quiet weekend.  I was able to spend a lot more time holding Ezra and Lauren got to see Atreyu more.  Today we even got to get out for a little bit and see the sunshine, something that we haven’t seen much of lately.  A former coworker of Lauren’s lives down here and offered us dinner and a movie while she watched Atreyu.  She has a daughter about the same age as Atreyu, so it was nice for the both of them to play together. Lauren and I got to go see True Grit, which was really good.  We hardly go to the movies even when were home, so it was nice to have a quick date.

We are hopeful, and pray that this is the week that Ezra gets to have his final evaluations and gets clearance to go home.  It still seems a long way off, but it is possible.

Today Ezra went down for a CT scan and some X rays to check the shunt placement. Instead of having to go in a transporter bed he got to go in a stroller all bundled up.  The scan showed that the shunt was good and he is doing really good today.  He is eating well again, he’s off pain meds and tomorrow he will be back off the antibiotics.

The physical therapist came by to help with some positioning because he is getting to lay on his stomach a little more now rather than just his side.  Now we are trying to get a consult with orthopedics and urology, but it has been difficult getting the communication clear between all of Ezra’s doctors.  At this point that is all that is keeping us from being able to come home.

We are getting ready to go to bed and start a new day.

Ezra is doing great. I stopped by tonight to say hi and we were able to take him off the vent. He started breathing great on his own and later tonight he can start eating again. Now the next step for the shunt is praying for no infection. Infection doesn’t normally happen, but sometimes it does. I really hope it doesn’t happen to us.
Thank you for all the prayers today and encouragement.  We have so much great support around us.