Day 46

We are still on the path to head home. Things are looking good to leave tomorrow.

Ezra had his VCUG and things look alright for now. Which mean no cathing and we don’t have to follow up with urology for 3 months. The bladder changes so much so who knows what Ezra bladder will be like in 3 months, but I will enjoy this time where I don’t have to worry about it. Ortho checked out his hips and they look ok also. They are not dislocated but he does have shallow hips. Nothing is being done about it now.
It is so nice not having to worry about this extra stuff and being able to enjoy him just being a baby.

Everyone in the NICU was worried about us taking the long ride home and having Ezra in a car seat for so long, but thankfully the PT here was able to cushion the carseat so there is not as much pressure on the wound. We will have an even longer trip home having to stop every 30 mins, but at least we will be heading in the right direction, no matter how long it takes us to get there.

Tomorrow morning Ezra has an ultrasound to check his head again. If there is a problem then we will have to stay another day or so for them to do a revision on the shunt. I think he is doing great and his head has been feeling less full, so my hopes are high that he should be fine.

I am still waiting for something to go wrong that will cause us to stay here longer. We are so anxious to get home and pray that it will be friday.

God has already done so many amazing things in Ezra’s life. None of the doctors thought he would heal this well, and he has! Please continue to pray that he is well enough to come home!