Today is Laurens birthday. Most of it was spent sitting with Ezra, but she did get some family time. Todd and Amy (Laurens brother and his wife) came and visited and we were able to go out for diner along with her mom. It was another nice break from the hospital,but every moment away is tough when your newborn is in the NICU. Lauren also got to spend some time with a local spina bifida moms group who was meeting tonight.
We were looking forward to getting some new recovery updates from the specialists who have been working with Ezra. Sadly, that wasn’t the case. If there is one theme for this whole story it would be wrapped up in one word: wait. We know that for at least one of the surgeons this is his surgery day, tomorrow is his office day, so hopefully he will be by to give us some updates to Ezra’s progress. There has been some fluid build up in Ezra’s back , but it is soft and they are not concerned about it right now. I gave Ezra his bottle this afternoon, and he took the whole thing, about 50ml. I don’t know if I’m better at feeding him or just more patient and don’t give up when he fusses or takes a break. Either way, it is good to see him eat. I even got to see his eyes for a moment, now that he is waking up a little more.
Tomorrow is the grand opening of the new $300 million Helen Devos Children Hospital. We don’t anticipate having to move rooms, but it might cause some more commotion as everyone else adjust to the new facilities. Any visitors will come through the new building, and you can’t miss it.
The first week is over, and it has flown by. Most days I didn’t know what day it even was. As the days turn to weeks, we will needs Gods strength and grace to endure. With out it I don’t know how we would even breath.