We are getting ready to go to bed and start a new day.
Ezra is doing great. I stopped by tonight to say hi and we were able to take him off the vent. He started breathing great on his own and later tonight he can start eating again. Now the next step for the shunt is praying for no infection. Infection doesn’t normally happen, but sometimes it does. I really hope it doesn’t happen to us.
Thank you for all the prayers today and encouragement. We have so much great support around us.
Today Dave and I got some extra cuddles in with Ezra. Tomorrow he is scheduled for shunt surgery at 8:30AM. Pray that all goes well and that it helps Ezra. We will keep you updated.
Life is so much better when you get to hold your baby. Also when Dr. Mann, the plastic surgeon, stops by and says “next week if things are going well with everything else we can talk about you guys going home”. Yay!
We still have to make sure everything is ok Neuro-wise and run the other test for urology etc. but the words “going home” from one of Ezra’s doctors sounds great.
I feel much more comfortable handling Ezra now. For a while I felt like if I even thought about holding or moving him it would cause his back to open and we would have to start over. Silly I know, but I was so paranoid about his back. Just being able to hold him, move him around and being told everything is great has relieved a lot of that stress.
Ezra’s head keeps growing, which means that it is filling with fluid. He is alright right now but it just means that a shunt will more than likely happen. He has another ultrasound on Monday and we will see from there.
We know that God is working miracles in Ezra’s life already. We are so blessed that he is healing so well and we know that this is all God and we thank everyone for lifting him and our family up in prayers. I know we wouldn’t be this far with out the prayers and God’s blessings. So thank you so much. Continue to pray that he keeps on healing.
Plastics stopped by while I was sitting with Ezra. They were really optimistic. They said his back is healing much better than expected. Everyday it is noticeably looking better and better. I asked if they think with the way things are going if Ezra would need another surgery on his back. He said with the way things are healing he probably wont. Which of course is amazing! God is so good, thank you for the prayers. Also plastics approved Ezra to be on his back for short periods of time (which means he can get all his other testing done and do some more PT). Also with Ezra’s miraculous healing I get to hold him if Neuro says it is alright. Neuro didn’t stop by today so hopefully tomorrow, if not I will have them paged so I can ask, cause I want to just cuddle with my little boy.
Kapow!
Today was a good day but at the same time I feel like I have been here forever. I am readyto go home, Atreyu is definitely ready to go home, and I am pretty sure Dave is too. Were just waiting on the other one! They are still thinking another 4 to 6 weeks for the wound to heal enough to go home, pray it goes fast!
Today was one of those days where I just wanted to take my baby and go home. Nothing went wrong, I just feel so exhausted and want to cuddle on the couch with Ezra watching a movie.
My baby boy is starting to wake more for his feedings. It’s nice to see his eyes and see him looking around when I am talking to him.
