Category: Spina Bifida

Life is so much better when you get to hold your baby. Also when Dr. Mann, the plastic surgeon, stops by and says “next week if things are going well with everything else we can talk about you guys going home”. Yay!
We still have to make sure everything is ok Neuro-wise and run the other test for urology etc. but the words “going home” from one of Ezra’s doctors sounds great.

I feel much more comfortable handling Ezra now. For a while I felt like if I even thought about holding or moving him it would cause his back to open and we would have to start over. Silly I know, but I was so paranoid about his back. Just being able to hold him, move him around and being told everything is great has relieved a lot of that stress.
Ezra’s head keeps growing, which means that it is filling with fluid. He is alright right now but it just means that a shunt will more than likely happen. He has another ultrasound on Monday and we will see from there.
We know that God is working miracles in Ezra’s life already.  We are so blessed that he is healing so well and we know that this is all God and we thank everyone for lifting him and our family up in prayers. I know we wouldn’t be this far with out the prayers and God’s blessings. So thank you so much. Continue to pray that he keeps on healing.

Plastics stopped by while I was sitting with Ezra. They were really optimistic. They said his back is healing much better than expected. Everyday it is noticeably looking better and better. I asked if they think with the way things are going if Ezra would need another surgery on his back. He said with the way things are healing he probably wont. Which of course is amazing! God is so good, thank you for the prayers. Also plastics approved Ezra to be on his back for short periods of time (which means he can get all his other testing done and do some more PT). Also with Ezra’s miraculous healing I get to hold him if Neuro says it is alright. Neuro didn’t stop by today so hopefully tomorrow, if not I will have them paged so I can ask, cause I want to just cuddle with my little boy.

Today was a good day but at the same time I feel like I have been here forever. I am ready to go home, Atreyu is definitely ready to go home, and I am pretty sure Dave is too. Were just waiting on the other one! They are still thinking another 4 to 6 weeks for the wound to heal enough to go home, pray it goes fast!

Today was pretty uneventful in the NICU.  Lauren felt great today, which was really nice.  Atreyu on the other hand had a tough day.  He has had 6 teeth coming in all at once, and today he just wasn’t his day.  I stayed in the room with him all day, rather than taking him to go see his little brother.  He had a hard time going to sleep, but now he is asleep and hopefully, like his mom, he will feel great tomorrow.

Today Ezra had a lot of visitors from many different Doctors. There was physical therapy, urology, neurology and ultra sound.    Physical therapy showed Lauren some stretches that we can do with Ezras legs.  They also talked about some of the things that he will be doing once he can be on his back.  Urology stopped by to check his bladder, but we haven’t learned the results yet.  They too have to wait until Ezra can be on his back to do more thorough tests.  Neurology, said that he is doing good.  There has been no change in the amount of fluid in his head, so still no shunt for another week.

Also Ezra has been doing well enough with his feeding that he gets to do on demand feeding.  Before he had fix amounts that he had to take on a rigid schedule.  Now he can eat how ever much he want, when he wants as long as he meets a daily total.

Lauren hasn’t been feeling too well, so we hope that she isn’t coming down with anything.  If she gets sick she may not be able to spend time in the NICU.