Category: Ezras NICU

We had a schedule change this morning and it looks like Ezra won’t be going in till 1030.

Today Dave and I got some extra cuddles in with Ezra. Tomorrow he is scheduled for shunt surgery at 8:30AM. Pray that all goes well and that it helps Ezra. We will keep you updated.

We were just getting used to Ezra with out any tubes and tape all over him and today he got an IV line placed back into his arm.  The neurosurgeon check on him today, and said that he needs the shunt surgery.  The surgery is scheduled for Wednesday.  We don’t know what time, because there is another shunt surgery before him.

This is a pretty routine surgery that this surgeon has preformed many times, but it is tough thinking that they will be sticking something into his head.  Also he will be under general anesthesia and on a respirator again.

His back continues to do well.  The color of the wound is looking more like flesh and less like a scab.  The shunt incision will be small, so the recovery from that will be quicker than what his back has been taking.  We are still hopeful to return home before too much longer, however, right now he has another hurdle to get over.  We appreciate all the prayers and  support.  They will especially mean a lot to us on Wednesday.

Monday, Ezra gets another head ultrasound.  If they decide that he needs a surgery this week, it should be on Wednesday.  He is doing really good on all his feeding and all of his vitals.  His back is continuing to heal well.

This weekend we were able to have some nice family time since I wasn’t working. Atreyu gets restless in the NICU after a little while, but the nurses are really good at distracting him.  Tomorrow we’ll be back to our weekday routine.  The days can seem long, but as we look back it goes by pretty fast.  As much as I like spending more time with Atreyu, I am looking forward to things to get back to “normal.”

Life is so much better when you get to hold your baby. Also when Dr. Mann, the plastic surgeon, stops by and says “next week if things are going well with everything else we can talk about you guys going home”. Yay!
We still have to make sure everything is ok Neuro-wise and run the other test for urology etc. but the words “going home” from one of Ezra’s doctors sounds great.

I feel much more comfortable handling Ezra now. For a while I felt like if I even thought about holding or moving him it would cause his back to open and we would have to start over. Silly I know, but I was so paranoid about his back. Just being able to hold him, move him around and being told everything is great has relieved a lot of that stress.
Ezra’s head keeps growing, which means that it is filling with fluid. He is alright right now but it just means that a shunt will more than likely happen. He has another ultrasound on Monday and we will see from there.
We know that God is working miracles in Ezra’s life already.  We are so blessed that he is healing so well and we know that this is all God and we thank everyone for lifting him and our family up in prayers. I know we wouldn’t be this far with out the prayers and God’s blessings. So thank you so much. Continue to pray that he keeps on healing.